Patched Beauty: Challenges persons with vitiligo face in Kenya - my name is Lanna hater and vitiligo is
beautiful one going Jay and Julie now
sue you might have been raised worlds
apart but they have something that
Bond's them together they both suffer
from vitiligo to the naked eye the
stories might appear similar but it is
so different in every aspect you see
here it was dotted on my face so people
dreams can say mean things hi knock our
you know so these are they I went to
Hilton a kid these are these are makeup
shop there
I tried I tried the Lydia's like my
friend you can't even conceal these so
just forget about it I was being big
enough being abused psychologically
because he used to tell me I can never
be somebody I'm a mother of three kids
who.
Patched Beauty: Challenges persons with vitiligo face in Kenya
Patched Beauty: Challenges persons with vitiligo face in Kenya
can accept you the way you are look
at your skin condition but what is
vitiligo which leg with an autoimmune
condition where your own immune cells
affect cells called melanocytes which
are cells that contain their learning
now because of the destruction of this
cell you end up getting
IRA's or patches of the skin if you do
not have Halle Nona why hito was born
and brought up in Donora at the age of
four her mother noticed an unusual
birthmark on her bubbly daughter her
mother would seek the counsel of Lohnes
grandmother unfortunately she was as
clueless as her daughter there is a
specific medicine of water in medicine
you apply then you go to the Sun gosh
alien phenomena I woke up one morning
and I was white all over my hands my
legs my thighs such incidents for young
Luna would lead the now mother of one
into depression I cried I told my mom
this is not normal
I
don't want to leave for one today even
though she had a supportive family back
at home life in high school proved to be
anything but what she might have
expected bullying from
heaviest teenagers learn our fists towns
from unexpected quarters pounamu to
Hoonah molly a physics teacher though I
was not doing physics he used to call
him soon
good job a Mizzou and one day I was like
where my limo missing Mizzou to make the
situation was her paternal grandmother
labeled her Zumba the
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neighbors there
was a neighbor called mama kamau and
wanna totally a magical scene McKennon
kappa teamuk Janica fun Hanukkah song -
and on each other young she came she put
the water down she was tender with soap
angie and i was like seriously not do i
have lived like that but i told them
they're never going to bring me down
this is not inability there's not a
disability i can do anything that you
can we are just the same and I'm unique
you have the one color I have the two
talents Luna is not the only one who has
faced such challenges 30 year old Jelena
SuJu was rejected by her own biological
father
later in her adult life she was panned
by men she sought solace with I felt
like I want to commit suicide actually
followed by like three hundred four
syllables and I only slept buek in their
body and disputes and I continued and I
was like no I see this thing's over
Greg's dad struggled ruined my life and
it wasn't the first time I tried to kill
myself by anyway I decided to go back
home to my
mom so I just fucked my
feelings everything making then I went
back to my moms
Julie currently has four children she's
a perfect example of making lemonade
from lemons that life has offered her on
most evenings you'll hear her voice on
need radio an online radio station when
she's not in studios
struts the catwalk as a part-time model
after that after week is when I met with
big I don't know if you know Big Ideas
entertainment so when I met up with one
of them and took a photo of me after
taking a photo and then the comments and
they came and told me that you do
photogenic I was like what do you mean
by photogenic see everybody takes after
watching her no you look very good on
camera you should just think about
yourself as a model or something
Julie recalls the days when she was in
primary school and was bullied enough
times that's until one day she'll just
make fun of me daily daily daily and so
I decided to close a closing day nothing
gonna wear away so I forced her and I I
warned after I warned though truly part
of punishment and all that but something
changed in me the first I could defend
myself
even though she regrets that fight she
realizes that it was a battle that
needed to be fought and won this would
serve her well as she proceeded to high
school where she learned how to defend
herself she told them that the condition
was contagious and fortunately this line
could not be used in the real world that
understand very little about vitiligo if
for example like we took just a walk
with you just outside just outside there
just a car walk you just see how people
stare
and this is during the day
everybody's walking but they were
stopped walking and look at you they
look at me so imagine going through that
every day it is the same script but
different costs for the people living
with the condition in the country when
going Jai is a former nominated member
of the Neary County Assembly a master's
degree holder and says getting a job has
been an uphill task you'd go and get
jobs but like I had gotten a job at a
bank but people who've not come to my
tailor so I'd still there they hold it
will come to live they'd come to you
tell her go to someone else's tell about
my tailor shield seek comfort in tattoos
that proved to be a destruction for many
people she currently has to endure them
it has worked till today people actually
notice that that was not a little ego
fast just like Julie Rosa Koth has been
facing the same problem rejection from
the man she loves so much that
her
husband is now seeking another wife she
believes it's due to her skin condition
now not to Kumasi so now Nakamura me me
Willie McGee hookah he cannot win
joining him is a attack he rakia cha-cha
gwenna
Minister Sacco nobody to Danny I'm
Willie for four years Rose has been
living in isolation extended family has
not come to terms with our condition
initially her husband provided the
much-needed support and comfort now only
her children are providing encouragement
but what hurts her most is the fact that
her last one daughter has the same
condition that has been a source of pain
it acquired a quirky you cutter what
when you are not to work about one onion
is that you come to me Akane easy
Nilekani una ninguna parte for persons
living with this condition the part of
the
skin that tans pale is vulnerable to
the Sun thus the need for the affected
person to use sunscreen interesting to
note though is that Kenyans living with
vitiligo have had to bear the pain of
the bands brought about by the Sun as
they cannot access sunscreen and this is
why and we pray that the government
would actually recognize us not because
we want to be put in the place of
disabilities but you want to get
amenities that will help us not get skin
cancer and only asking the government is
that will be able to get free sunscreen
just like people live in village and get
but the site is yet to be fully aware of
the same and we need to work together to
ensure that then even also differentiate
between open is gonna be today go but
actually and truly so but we have to
advance the agenda you know
everything
Isaac Morra is a nominated senator he
says that people living with vitiligo in
Kenya might be more official statistics
given by the World Health Organization
estimate that at least 2% of the world
population are people living with a skin
condition so it would be important to
have a head count for persons who have
believed in the country and because it
is not a genetic condition that then
would occur sometimes at birth and then
the doc Cosway late into your adulthood
maybe it would be better to work with
the original team I heard the facilities
as to occasion day you know the
frequency of their occurrence but even
as the few people living with vitiligo
continue to suffer without government's
intervention
advocates such as ongoing J have devised
new ways of helping people like herself
by partnering with companies such as
Navy and the albinism Society of Kenya
so as to help
salvage the situation by
providing sunscreen to the most
vulnerable people affected by the
condition Michaelmas got banters as I
was coming to distribute sunscreen and
and aura people thought that I was
coming to sell sunscreen and yet I was
coming to live persons living with
vitiligo sunscreen so I'm fully aware
because of cash flow issues within
government that's why I'm taking it up
how they're supposed to be treated
according to the NHS website there's
currently major a cure for vitiligo no
universally accepted method for limiting
the spread of the disease we have a
facility in Canada for
photo therapy I
did it when I was 18 years old we pay
300 possession and you see it depends
actually the interested intensity of a
body pay the 300 but you find if you
fully your body has proved it illegal
we'll go for a session of 30 minutes for
the 300
there are two types of vitiligo
segmental vitiligo an onset mental in
some cases the condition is also
hereditary method one actually has
sports which I started I noticed them
which doesn't scare me actually and the
funny thing is she even with all these
challenges all they want is to belong to
belong in a society that will look at
them as normal persons you see them
hating on them has created a lot of
depression in persons living with Italy
which is not really right it changes
there are times I see it's coming back
it's coming back I'm like yeah it's
coming
back a minute of a sudden I'm
turning right I'm turning and I'm like
yeah I'm becoming great again
for me I enjoy my with legal I don't
know about anyone else but for me the
patterns I check my patterns every time
there are times it will form the map of
Africa there's a tire me to reform I
love Han somewhere the same image just
Maps anything it just draws its own
pattern and for me I take it like God
just decided to draw me.
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